Exhibition - Portraits of Dementia

More than 50 million people are living with dementia globally. In the United States, one in three seniors suffers with Alzheimer’s disease or dementia at the time of their death. And yet despite the millions of individuals and families affected, dementia is often a taboo subject with limited public awareness or discourse. “Portraits of Dementia” destigmatizes those living with dementia through moving portraits and stories of lives well lived.

Artist Joe Wallace has been a portrait photographer and storyteller for 20 years. Like many, Wallace has a deeply personal connection with dementia. His maternal grandfather and hero, Joe Jenkins, had Alzheimer’s. His maternal grandmother had vascular dementia. And in recent years, his mother has begun her journey with the disease. Wallace was frustrated by the common, one-dimensional narrative of dementia-futility, despair and loss.

These are real and important elements of the dementia journey, but focusing only on the narrowest of views, very little is done to change the stigma of those living with the disease. Wallace feels strongly that to give the audience courage to act in ways large and small, you must show the whole story.

Through his photographs and storytelling, Wallace shows not only the fear, loss, and despair, but also the love, connection, dignity and powerful humanity that always remain-in the subjects, in the care-partners, and in the families and communities. That is the only path to evolve the narrative and have a positive social change.

A diagnosis can become a mechanism for segregating those affected from society, making it easy to see only the label instead of the individual. As Carrie Salter-Richardson, diagnosed with dementia, says, “It is my hope that my story and the stories of others just like me will start a conversation and end the stigma that comes along with this disease. Just maybe I can bring a new face to Alzheimer’s so people know that it can happen to anybody, not just the elderly.”

“People living with dementia must be seen as people first, not as their disease. Public recognition of the enduring humanity of those who live with disabilities, including cognitive disabilities, will decrease fear and stigma…Joe’s vivid photographs remind us of our shared humanity as well as the uniqueness of each person,” states Beth Soltzberg, director of Alzheimer's/Related Disorders Family Support Program, Jewish Family and Children’s Service.

Admission is free